Tuesday, March 6, 2012

Chapter 41 - March 6, 2012

Once upon a time, there was a prince that lived on a hill above the sea.  One beautiful summer morning, he awoke and decided to check out the surf.  He grabbed himself a coffee.  He grabbed his dog and he walked down to the cliff to see the waves.  On his way, he crossed a bridge, and on the bridge was a big green frog with a gold crown on her head.  The green frog said, "Kiss me.  I'll turn into a beautiful princess.  We'll make love all night, get married, have a happy life together."  He put the frog in his pocket and walked down to check out the waves.  She said, "Hey, aren't you going to kiss me?"  He took a sip of his coffee and he said, "Listen, after what I've gone through, and the condition I'm in right now, I'd rather have a talking frog."  Oh yeah, and by the way, the surf was up.  It was a good day.

Hi everyone.  I'm not sure if I told you, but I'll share it anyway.  I met my neuro surgeon the other week.  After meeting with him, he put his pen down, pushed back from the desk and said, "Brian, you give me hope."  That's cool.  You see, when you're like this, all messed up, it helps to have positive reinforcement.  For example, I had two friends come by last week.  They hadn't been here for three months.  They said they noticed positive and good improvement.  I don't feel it, but they say they see a good difference.  It's really encouraging.  Although, one girl said I had a big belly.  She even gave my belly a name.  It was kind of cute.  Weird but cute.  Thank God she didn't see my belly six months ago.  She would have given my belly a name and a zip code.  It was big.  When you're in the hospital, your body changes into some weird form.  I looked like Golum in Lord of the Rings.  They fed me thickener in my liquids to make it easier to swallow.  The drawback was that the thickener was very starchy.  It gave me a belly and stopped me up.  So now I use a juicer and drinks like mango and peach.  You know, stuff like that.  It's all natural and good for me.  Try banana juice in your coffee.

Speaking of thin liquids and swallowing, I'm going to a special class, one that teaches me how to swallow without aspirating.  Aspirating is when liquid goes into your lungs.  Anyway, they put electric charge on my neck, they put the charge on certain muscle groups.  I've been taking the class for about a month now, three days out of the week.  I notice a good improvement.  It has helped me get better at swallowing things like coffee, water, you know, stuff like that.  I highly recommend it.  I'm not sure if it is therapy or torture.  Either way, it works.

It's been fairly quiet this week.  I continue to go to water therapy and do therapy at home.  My days are long and tedious.  It's the same thing over and over again.  Wake up at 7.  Have some breakfast.  Use the bathroom.  Then my therapist comes.  I take a shower.  Do therapy until noon.  Have lunch.  Take a nap.  Do more therapy from 2 to 6.  Have dinner.  Go to bed.  Really exciting.  It's been like this for almost 3 years now, but I am getting better.  I was thinking the other day, hell, I couldn't even move my finger.  Now I'm feeding myself.  It ain't pretty, but it works.

I uploaded a photo of me at therapy.  It's pretty exciting to be able to walk again.  It's no mile run or 10K run, but it sure feels good.  I've been on my back for a long time.  Feels good to stretch my legs again.  I'll make it a short one this week.  Have a good one.  Love, B. Nice


  1. good to see you on your feet!

    Sharon xxx

  2. We would love to see more pics, and please no more kissing frogs (ok keep your sights on love, but... life is not a fairy tale. Love you
    Deb, Uncle Rick, and Izzy